Vilka råd skulle du ge till någon som just fått diagnosen Multipel epifyseal dysplasi (MED)?

Läs om vilka råd de som levt ett tag med med Multipel epifyseal dysplasi (MED) ger till den som just fått sin Multipel epifyseal dysplasi (MED) diagnos

Original


It's not as scary as it sounds! It is a jumble of possibilities in regards to what symptoms each person experiences, and it is not too well known resulting in minimal resources. Recent years have meant an increase in more widely available treatment options and better advances in technology. So if you need a back brace now-a-days, it is much smaller and less noticeable than ones like what I wore in the early 90s. Be honest with yourself and your limitations without adding unnecessary limits. Lastly, don't bottle what you feel about the whole situation up! Talk to people who can give you support. You do yourself no favors by remaining silent!

Översatt