Original
*No full day employment
Create a service Or products that clients need. Set Up and manage from your bed.
*I found that I needed to change my mind. Putting me in the situation, where patients needs my knowledge of daily coping, which I fully enjoy, giving me the feeling of worthyness back. But it is tough. Just hang in there
*you more sick than what your employee can take, and it leads to lots of stress, and your SBS will become worse. Stay Away from Stress & toxin people & environments.
*however when you do feel beter- get your laptop and do research about your SBS. Knowledge is power - it gives you some sense of control over your body
*see a trauma Phycologists ASAP. You go through a severe emotional loss of your body - almost like dearth.
*Never forget that our main caretaker are our Spouses. He/She needs to get extra extra support in order for him / her to look after you as patient