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Prioritize first it's so important to be your own Advocate and if you're unable to have someone appointed to you to be an advocate for your health do not allow people to dictate in the medical community what your life for look like what they're going to do without you consenting and understanding the treatments but they are administering. Next is to immediately be connected with a network of people who have the disease through Facebook or other websites designed to lend support have open Forum conversations access to research and help better understand the disease itself. One step in established making sure that you're getting put the physical therapy and Rehab needed to recover to the best of your ability and to seek counseling to help you emotionally process the devastating losses that come with this disease. Letting go of fear through obtaining knowledge and information bring great comfort to most that is my recommendation for anyone who's new to this disease.