Vilka råd skulle du ge till någon som just fått diagnosen Makulopapulär kutan mastocytos (Urticaria pigmentosa)?

Läs om vilka råd de som levt ett tag med med Makulopapulär kutan mastocytos (Urticaria pigmentosa) ger till den som just fått sin Makulopapulär kutan mastocytos (Urticaria pigmentosa) diagnos

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I don't have much advice because there isn't much to offer. When I was seeing a Dr regularly I felt like a chronically ill patient and it took a toll on my psych. I opted to skip the annual exams, the multiple tests that were required yearly, multiple medications that weren't adding value to my life. I have not seen a Dr for this in 5+yrs and I'm fine. I treat with over the counter allergy meds and I get through life just fine. I pray endlessly for this to self resolve and for Drs and researchers to discover a treatment and cure.

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