- Trigeminal Neuralgia
- Interviews
Starrwy's interview
How did all start?
It was a Sunday, felt light headed but not dizzy, went to ER, said it was Bells Palsey, Monday, bacck to ER, must be dental problem, Dentist said nope nothing wrong, now having electric bolts of pain. Not sleeping, noypt eating, not finding any relief. Tuesday back to er, you have to do something thru my teeth as it was very awful to open mouth to even talk. Got some vicadin. Was able to open mouth to Earp mashed potatoes and apple sauce. Wednesday I saw my PA, she immediately advised me my problem as TN.
Do you already have a diagnosis? How long did it take you to get it?
4 days
For what medical specialties have you been treated? What has been the most useful specialty for your?
Saw two neurologists, waste of time and money
What has been the most useful thing for you so far?
Pain under control in two weeks with Gabapentin. Thank God mostly under control last 21 years.
What have been your biggest difficulties?
Fatigue in the first 3 months
How has your social and family environment reacted? Have your social or family relationships changed?
Most do not understand and I just gave up trying.
What do you think about the future?
Has to be a hope for a cure
So far, which years have been the best years in your life? What have you done during them?
Last 9 years being retired, I volunteer and travel.
If you had to describe your life in a sentence, what would it be?
Satisfying
Finally, what advice would you give to a person in a similar situation?
Do what you can while you can. I have been very fortunate
