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What is the life expectancy of someone with Tuberous Sclerosis?

Life expectancy of people with Tuberous Sclerosis and recent progresses and researches in Tuberous Sclerosis

Tuberous Sclerosis life expectancy
4 answers
depends on severity and participation in both the discovering and solving of the problem

Posted Jun 18, 2020 by Nick Fn Blum 2640
Translated from french Improve translation
Life expectancy, meanwhile, is normal in the vast majority of cases. However, quite rarely, some complications tumor: kidney or brain of prolonged convulsive seizures (status epilepticus) or a lung disease, very advanced, can reduce the life expectancy. In some exceptional cases, the STB requires a kidney transplant or a lung. This is why in early ultra-specialized are essential in order to limit the occurrence of such developments.

Posted Apr 7, 2017 by Guillaume 1085
Translated from spanish Improve translation
Try to live the best you can and in the best possible conditions

Posted Sep 19, 2017 by claudia 2020
Translated from spanish Improve translation
The first thing that I read with regard to that, was 26 years old, I'm 38 and I still hope to live longer, it all depends on the aggressiveness of the disease as I said before today is not at all defined, and each individual lives to the disease in different ways and times

Posted Oct 3, 2017 by PAOLA 2500

Tuberous Sclerosis life expectancy

Celebrities with Tuberous Sclerosis

Celebrities with Tuberous Sclerosis

2 answers
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Is Tuberous Sclerosis contagious?

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Is there any natural treatment for Tuberous Sclerosis?

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What is the history of Tuberous Sclerosis?

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World map of Tuberous Sclerosis

Find people with Tuberous Sclerosis through the map. Connect with them and share experiences. Join the Tuberous Sclerosis community.

Stories of Tuberous Sclerosis

TUBEROUS SCLEROSIS STORIES
Tuberous Sclerosis stories
¡Hola! Soy la mamá de Roberto, mi bebe de 1 año.  Mi nene fué diagnósticado cuando tenía 6 meses de edad, después de que los espasmos infantiles comenzaron.  Hemos pasado por un sinfín de emociones al inicio de este viaje, he leído much...
Tuberous Sclerosis stories
Hello, this my story! My grandson is 3 he was born with TSC he was diagnosed at 4 months old! He has had numerous seizures and has been on lots of Meds! He just had brain surgery in sept! And an MRI in December and it shows a big tumor in back of his...
Tuberous Sclerosis stories
my daughter has tuberous sclerosis diagnosed at 8 months. Is now 7 . I'm a single dad taking care of her since she was 1. It's hard but would not know what I would do without her.

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Tuberous Sclerosis forum

TUBEROUS SCLEROSIS FORUM

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