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What is the life expectancy of someone with Von Hippel-Lindau Disease?
Life expectancy of people with Von Hippel-Lindau Disease and recent progresses and researches in Von Hippel-Lindau Disease
The age was just increased to 65
Posted May 16, 2017 by Kerry-Anne 1000
Depends on symptoms. It is in your DNA. Some have it worse than others. Depends where tumours are located.
Posted May 16, 2017 by Paul 1100
Previously, VHLers lived to about age 52-54. The past several years, we have stretched that number to 75-80. When my Mom died in 1971 she was 29 years old. We've come a long way, baby! Participate in clinical trials, donate tissue when you have surgery - do your part to keep progress moving forward! Let's find a cure!
Keep up with your imaging and appointments. A brain tumor, left unchecked, can cause an aneurysm. A pheochromocytoma that is ignored can potentially cause a stroke. Renal cell carcinoma, if left untreated past 3cm, may metastasize to the lungs, bone, etc. and progress to the point it is untreatable.
Keep up with your imaging and appointments. A brain tumor, left unchecked, can cause an aneurysm. A pheochromocytoma that is ignored can potentially cause a stroke. Renal cell carcinoma, if left untreated past 3cm, may metastasize to the lungs, bone, etc. and progress to the point it is untreatable.
Posted May 17, 2017 by Bobbi 1000
i did a research and found out that their life expectancy are quite short, about 49
Posted Nov 14, 2017 by quan 100
