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What is the history of Wiedemann-Steiner Syndrome?

When was Wiedemann-Steiner Syndrome discovered? What is the story of this discovery? Was it coincidence or not?

History of Wiedemann-Steiner Syndrome
1 answer
The syndrome was originally described in 1989 by Hans-Rudolf Wiedemann. The genetic basis for the syndrome was identified by Dr. Wendy D. Jones in 2012.
Posted Jan 16, 2018 by anonymous 3980

History of Wiedemann-Steiner Syndrome

Wiedemann-Steiner Syndrome life expectancy

What is the life expectancy of someone with Wiedemann-Steiner Syndrome?

3 answers
Celebrities with Wiedemann-Steiner Syndrome

Celebrities with Wiedemann-Steiner Syndrome

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Is Wiedemann-Steiner Syndrome hereditary?

Is Wiedemann-Steiner Syndrome hereditary?

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Is Wiedemann-Steiner Syndrome contagious?

Is Wiedemann-Steiner Syndrome contagious?

3 answers
ICD9 and ICD10 codes of Wiedemann-Steiner Syndrome

ICD10 code of Wiedemann-Steiner Syndrome and ICD9 code

3 answers
Natural treatment of Wiedemann-Steiner Syndrome

Is there any natural treatment for Wiedemann-Steiner Syndrome?

2 answers
Living with Wiedemann-Steiner Syndrome

Living with Wiedemann-Steiner Syndrome. How to live with Wiedemann-Steiner ...

2 answers
Wiedemann-Steiner Syndrome diet

Wiedemann-Steiner Syndrome diet. Is there a diet which improves the quality...

2 answers

World map of Wiedemann-Steiner Syndrome

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Stories of Wiedemann-Steiner Syndrome

WIEDEMANN-STEINER SYNDROME STORIES
Wiedemann-Steiner Syndrome stories
GUS'S STORY: OUR SEARCH FOR ANSWERS
Gus was diagnosed with Wiedemann-Steiner syndrome in July 2017, just shy of his 3rd birthday. Here is our story... "Please don't shoot the messenger, but...can we talk?" I will never forget this day. Gus was 8 months old, and I had just arrived...
Wiedemann-Steiner Syndrome stories
AMANDA'S STORY
Our son Finn (6) was diagnosed with WSS in May 2014.
Wiedemann-Steiner Syndrome stories
OUR DAUGHTER
Our daughter was diagnosed (I think 2014) aged 8. We knew Evie had some sort of syndrome when she was born in 2006. Initially the geneticists thought it was Cornelia de lange syndrome then she got the diagnosis a few years ago. 
Wiedemann-Steiner Syndrome stories
TATUM
My son, Tatum was diagnosed in January or February, 2016. He is 3!
Wiedemann-Steiner Syndrome stories
EMMA'S JOURNEY: FROM THE NICU TO WSS
Emma was a scheduled cesarean section on 7/9/12 at Women & Infants in Providence at 39 weeks and 3 days following an uneventful pregnancy. She immediately showed difficulty breathing and was brought to the NICU where she was diagnosed with PPHN. Over...

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