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Which advice would you give to someone who has just been diagnosed with Wolf Hirschhorn Syndrome?
See some advice from people with experience in Wolf Hirschhorn Syndrome to people who have just been diagnosed with Wolf Hirschhorn Syndrome
Please do not believe everything that you read on the internet because every child with Wolf Hirschhorn Syndrome is different. The road is a bumpy one, but also a very rewarding one. Join the support group.
Posted May 22, 2017 by Bentley 500
Look for a geneticist who can tell you everything about the syndrome and focus on first of all managing he condition and creating “your own normality.” Every child is so different with WHS, there are rarely two the same, so it is important to remember that Doctors can only treat for generalised symptoms and what your child may have may not nesescarily be the same as another.
Posted Jan 9, 2018 by Nick 1400
