48,XXYY综合征患者的生活。如何与48,XXYY综合征共存?

48,XXYY综合征患者是否可以过正常的生活?48,XXYY综合征患者应该如何保持乐观?48,XXYY综合征可能会影响您的日常生活,但您必须保持乐观。看看其他病患如何抱着乐观的态度与48,XXYY综合征共存

原本


If you read the forums re: people with KS - it reads like an obituary - its like the worlds worse news has been given to them and they only have minutes to live.

If you see it for what it is then you can live with KS - it just requires more work than the average joe.

Am I happy living with KS; Yes - everyday I find more information out about KS; some days I don't bother - it's fine. There are things I can't change, but I also know there are explainable reasons as to why things in the past happened and I understand it now.

To be happy with KS you have to take everyday as it comes; and if you are unhappy with something - change it. To get the best treatment both medically and psychologically you have to push like hell - but you will get it.

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