贲门痉挛患者是否可以寻找伴侣/维持与伴侣的关系?

贲门痉挛患者对于是否可以找到伴侣以及在得知患上贲门痉挛后是否可以与伴侣保持关系的个人意见。感情上可能会遇到哪些问题?

原本


Absolutely! When I was first diagnosed, I was married with a small daughter. My ex-husband understood and completely supported me through the worst of it whilst I was being prodded and poked by what seemed to be at the time, and endless line of doctors! My little girl (not so little now, she's 21!) has done her own research into this but has also witnessed pretty much every stage. Even to the point of holding the plastic bag to my face while I've been driving, with stuck food being vomited back up.

Now I'm in a very healthy, loving and supportive relationship and although he struggles to see me in pain at times, still sleeps next to me with my gurgling and coughing! So I'd say I'm pretty much doing OK :-)

I was and still am really open about suffering from this disease so he knew from the off. My advice would be the same for anyone embarking on a new relationship - be upfront. If they don't want to at least try to understand, or look at you like a leper, the show them the door. This disease is difficult enough to deal without having to deal with someone else's hang ups.

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