Allan-Herndon-Dudley综合征患者的生活。如何与Allan-Herndon-Dudley综合征共存?

Allan-Herndon-Dudley综合征患者是否可以过正常的生活?Allan-Herndon-Dudley综合征患者应该如何保持乐观?Allan-Herndon-Dudley综合征可能会影响您的日常生活,但您必须保持乐观。看看其他病患如何抱着乐观的态度与Allan-Herndon-Dudley综合征共存

原本


Patients with AHDS (MCT8) are not able have independent lives. They need to be taken care of 24h a day.
Allan-Herndon-Dudley syndrome only affects boys. Depending on the mutation, the symptoms can be very severe or milder. No matter the severity though, all children share symptoms like: poor head control, central hypotonia and motor and mental delay.

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