Arnold–Chiari畸形患者的生活。如何与Arnold–Chiari畸形共存?

Arnold–Chiari畸形患者是否可以过正常的生活?Arnold–Chiari畸形患者应该如何保持乐观?Arnold–Chiari畸形可能会影响您的日常生活,但您必须保持乐观。看看其他病患如何抱着乐观的态度与Arnold–Chiari畸形共存

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You have to make adaptations to your life. From no more roller coasters to being mostly bedbound and relying on others when you were once so independent and having a custom power wheelchair and handicap house to multiple surgeries one after another. Again, it depends on the individual. You of course would be much happier without Chiari especially for the pain aspect. But you can be happier once you accept it. That part is hard.

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