慢性疲劳综合征/肌痛性脑脊髓炎患者的生活。如何与慢性疲劳综合征/肌痛性脑脊髓炎共存?

慢性疲劳综合征/肌痛性脑脊髓炎患者是否可以过正常的生活?慢性疲劳综合征/肌痛性脑脊髓炎患者应该如何保持乐观?慢性疲劳综合征/肌痛性脑脊髓炎可能会影响您的日常生活,但您必须保持乐观。看看其他病患如何抱着乐观的态度与慢性疲劳综合征/肌痛性脑脊髓炎共存

原本


My life has changed radically since having ME. I used to be very fit, in an average week, I'd cycle 60 miles, run 2, swim 1, do weights, cardio and circuit train. I also worked 3 days a week, had 3 children of my own and fostered another 2. I became ill on a cycling holiday and haven't been able to get in my bike since.
It would be easy to give up, to wallow in self pity and depression, but I'm choosing not to. I have had to reevaluate my life and look at how I measure achievement.
I am the emotional rock of my family and friends. I'm who people look to for love and support. I have develop new hobbies and interests and am happy. My life looks very different but is still good.
Think about what you want from life, what you can put in. Grieve for what you've lost, yes, but don't wallow in it. Find a support group. Share how you feel, accept help. Having ME does not diminish you as a person, needing help and support is a gift you can give to the person who helps you. They will feel good about themselves for having helped you; that's a blessing to them.

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