原本
A rheumatologist diagnosed Fibromyalgia in 2015, but I was not responding to meds so GP did the immune panel of blood tests and mine came back with off the charts reactivated Epstein Barr Virus. Since doctors are NOT taught about using anti-virals (they generally just leave viruses alone) by the time I had done the research AND fought for long term high dose anti-viral (Valtrex) EBV was entrenched and so was ME/CFS. It took only 4 years from initial, extraordinary fatigue after any exertion/exercise (a common early symptom) to being completely housebound & bedridden. Still fighting for SSDI and living off shrinking retirement funds. #SillySheets is a fundraiser I organized with a friend (12 years fighting ME/CFS) to benefit www.omf.ngo research. US government funding is essentially $5 per patient.