您有什么建议可以提供给慢性疲劳综合征/肌痛性脑脊髓炎的新患者?

查阅其他慢性疲劳综合征/肌痛性脑脊髓炎患者给予慢性疲劳综合征/肌痛性脑脊髓炎新患者的建议

原本


Find a support group - on line or irl. Talking to people who understand will help. Read the Spoon Theory, and work out how many spoons you have in your life. Talk to your doctor about your symptoms and ask about medication to alleviate them. Gabapentin for neuropathy, Baclofen or Amitryptaline for muscle spasms, pain killers, duloxetine and opioids if the pain is severe. (I'm not a doctor, they are some of the drugs I've been on)
Rest before you are tired, ignore bad advice from well meaning people, pace yourself.

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