您有什么建议可以提供给胱氨酸病的新患者?

查阅其他胱氨酸病患者给予胱氨酸病新患者的建议

原本


Be strong, don't get depressed. Listen to advice from others in the know. Take your meds, go to your appointments and learn everything you can about your disease. Most important, get involved with other people who have Cystinosis like you. You are special, you are a Cystinosis Warrior!

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