红斑性肢痛症患者的生活。如何与红斑性肢痛症共存?

红斑性肢痛症患者是否可以过正常的生活?红斑性肢痛症患者应该如何保持乐观?红斑性肢痛症可能会影响您的日常生活,但您必须保持乐观。看看其他病患如何抱着乐观的态度与红斑性肢痛症共存

原本


If you can avoid having flare-ups and finding a way to not let this disease cripple your way of life then that is an excellent first step. I live in an apartment that is air conditioning 24 hours a day and along with staying hydrated and taking my medications that is really all I can do but anytime during the day where I am not having flare-ups or I am actually able to sleep for a while that makes me happy.

翻译