范可尼贫血患者的生活。如何与范可尼贫血共存?

范可尼贫血患者是否可以过正常的生活?范可尼贫血患者应该如何保持乐观?范可尼贫血可能会影响您的日常生活,但您必须保持乐观。看看其他病患如何抱着乐观的态度与范可尼贫血共存

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Live life the way you want to. We all do. We all try our best to be as normal as possible. We all make mistakes and we learn from those mistakes just like any other human being. Try not to let Fanconi Anemia rule/ruin your life. You have choices, choices only you can make. Be a rebel every now and again. Keep your doctor's in the loop, don't lie to them.

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