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查阅其他肝醣储积症患者给予肝醣储积症新患者的建议

原本


With type 3 don't be overwhelmed and don't believe everything you hear. Most doctors have never heard of it or if they have, they have never treated anyone with it. Do your research and talk to many people who deal with it. Then formulate your own plan and go with it. You are your best advocate and will know your situation better than anyone!

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