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  5. 问题 9

肝醣储积症患者的预期寿命有多长？

肝醣储积症患者的预期寿命以及肝醣储积症的相关研究和最新进展

原本

For type 3, I'm not sure. I was told I would be dead before the age of 40. Even my specialist is amazed that I am still alive and I am doing amazing!! This disease is different in everyone so there is no telling!

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