Joubert综合征的饮食。是否有特定的饮食习惯可以帮助Joubert综合征患者改善病情?

您是否知道有什么饮食习惯是对Joubert综合征患者有益的?Joubert综合征患者应该避免什么食物?查阅对Joubert综合征病情有所帮助的饮食以及Joubert综合征患者应该多加摄取或避免的食物

原本


There is no general diet for Joubert syndrome, however some conditional dietary needs may arise, for example some children are tube fed or require a puréed diet due to oral motor, and aspiration issues. High calorie diets early on can help make up for feeding defecits and maintain healthy weights. Those with Kidney disease may require closely monitored fluid intake and output and a kidney healthy diet... etc

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