您有什么建议可以提供给皮肤红斑狼疮的新患者?

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原本


I would advise to work closely with your medical team, carefully exploring medications & their side effects. I think physical therapy in the form of mild exercise and massage therapy should become a core part of your health care. I kept trying to pretend I wasn't suffering for many years and it caused me some serious problems later on as I struggled to come to grips with my disease. Perhaps taking some extension education on chronic pain earlier in my life would have avoided this.

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