原本
The severity of your disease will determine your mobility, and ability to work. Personally, I work 40+ hours in a leadership role. There are days where I can't get out of bed, brain fog is embarrassing when you are presenting and can't remember the simple word you know, it's hard to be social some days.
I know other Mastos who can't leave their house without a mask. During a repetitive outbreak, some sleep for days, can't eat, who have issues with their blood pressures at dangerous lows. There are many other diseases linked to Mastocytosis that make life limiting.
Again, journaling your symptoms and treatments will help you treat your self during specific outbreaks. Listen to your body. If you think you need help, don't be afraid to call 911 or use your EPI. Most importantly, train your co-workers what to do to help you.