线状体肌病(NM)患者是否可以工作?他们可以从事哪种工作?

查阅其他线状体肌病(NM)患者对于线状体肌病(NM)患者是否可以工作以及适合线状体肌病(NM)患者的工作的意见

原本


It's really hard as it's a case by case basis. Things that cause fatigue would be hard. A job that has more sitting than standing and a job that requires brains not muscle! Nemaline peeps are usually gifted smart! Some may be on ventilators making it very difficult to work. Some may need accommodations.

翻译