苯丙酮尿症患者的生活。如何与苯丙酮尿症共存?

苯丙酮尿症患者是否可以过正常的生活?苯丙酮尿症患者应该如何保持乐观?苯丙酮尿症可能会影响您的日常生活,但您必须保持乐观。看看其他病患如何抱着乐观的态度与苯丙酮尿症共存

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You have to understand that PKU can be hard and frustrating but it helps a lot to have a view that you are created unique. Being PKU means God thought you are strong enough for this to be allowed into your life! It means you are incredible and that you probably are being raised with better health understanding than most people. It means that needles and fear don't go together for us. It means that your life is fascinating to people and while answering questions can become monotinous, people truly want to know what you deal with.

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