您有什么建议可以提供给POEMS症候群的新患者?

查阅其他POEMS症候群患者给予POEMS症候群新患者的建议

原本


I would connect with the few folks who have been diagnosed but i would caution! That poems makes snowflakes.of everyone. We're all snowflakes but each have unique variables and sometimes we are very unalike. There is a comfort in learning others have poems however it is dangerous to believe that we are not receiving proper care simply becauae we have learned of treatments others are receiving that we are not. We are as unique as snowflakes.

It is great tho to go to your doctor ready to ask about treatments you learn others have.

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