进行性核上性麻痹患者的生活。如何与进行性核上性麻痹共存?

进行性核上性麻痹患者是否可以过正常的生活?进行性核上性麻痹患者应该如何保持乐观?进行性核上性麻痹可能会影响您的日常生活,但您必须保持乐观。看看其他病患如何抱着乐观的态度与进行性核上性麻痹共存

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It is one of those life each day as it comes and appreciate what one can do as long as one can do it. I think also having family and friends around is crucial. My mother would light up anytime any of her family visited. It is such a lonely, isolating disease once one is unable to communicate or show emotion.

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