您有什么建议可以提供给斯特奇-韦伯综合征的新患者?

查阅其他斯特奇-韦伯综合征患者给予斯特奇-韦伯综合征新患者的建议

原本


Sturge-Weber Syndrome is never the parents fault. They did not do anything to cause this to happen to their child. Take your child to a neurologist, dermtologist, and opthomologist. Watch them closely. Although your child will exhibit the symptoms of sturge-weber the severities. do not be overprotective. Let them flourish like a normal child. Teasing will occour, but instead of getting mad, teach others about your child's condition. Awareness goes a long way. Make sure they get the appropriate help so they may succeed in school. Every Sturge-Weber child is different and will have differing life challenges.

翻译