结节性硬化症患者是否可以寻找伴侣/维持与伴侣的关系?

结节性硬化症患者对于是否可以找到伴侣以及在得知患上结节性硬化症后是否可以与伴侣保持关系的个人意见。感情上可能会遇到哪些问题?

原本


I think what I've seen is that sometimes my husband feels like he can't help me and feels like he should be able to help me when it comes to anything with my disease. I think you just take it a day at a time I know I am about to go through another surgery here in October a partial nephrectomy where they are going to remove part of my kidney and the AML and if they grow over a certain margin at least what my urologist said they can hemorrhage which I've had happen before. Also, I just feel if you talk it out and have communication with your partner and learn about it and like for me I reassure him that it's going to be okay.

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