逢希伯-林道症候群患者的生活。如何与逢希伯-林道症候群共存?

逢希伯-林道症候群患者是否可以过正常的生活?逢希伯-林道症候群患者应该如何保持乐观?逢希伯-林道症候群可能会影响您的日常生活,但您必须保持乐观。看看其他病患如何抱着乐观的态度与逢希伯-林道症候群共存

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Yes, you can absolutely be happy living with VHL. If you are feeling down due to loss of physical capacity or cognitive abilities, talk to your physician about medication to help before you fall into a deep depression. It can be very disheartening to get 'bad news' at every appointment, especially when we average 6+ appointments per year. Count your blessings. I remind myself often that my situation could always be much worse. I am not terminally ill. In most cases, a surgical procedure can be performed to remove the tumor. Keeping a positive attitude is 99% of the battle! You'll have bad days, we all do - but our life expectancy has increased greatly the past several years, and the miracle of modern medicine is amazing!

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