XP Support Group
详细信息
- 名字: XP Support Group
- 网站: http://www.xpsupportgroup.org.uk
- 地址: Instron House, Coronation Road, High Wycombe, Bucks HP12 3SY
- 联系
位置
描述
Supporting families in the UK with Xeroderma Pigmemtosum. We offer advice and grants for UV protective products. We hold an annual weekend night camp every February called the Owl Patrol. We assist families with travel and accommodation to attend the National XP Multi-disciplinary clinic at St Thomas' Hospital in London.
XP Support Group
详细信息
- 名字: XP Support Group
- 网站: http://www.xpsupportgroup.org.uk
- 地址: Instron House, Coronation Road, High Wycombe, Bucks HP12 3SY
- 联系
位置
描述
Supporting families in the UK with Xeroderma Pigmemtosum. We offer advice and grants for UV protective products. We hold an annual weekend night camp every February called the Owl Patrol. We assist families with travel and accommodation to attend the National XP Multi-disciplinary clinic at St Thomas' Hospital in London.