着色性干皮症患者是否可以工作?他们可以从事哪种工作?

查阅其他着色性干皮症患者对于着色性干皮症患者是否可以工作以及适合着色性干皮症患者的工作的意见

原本


I have XP and i work full time in the Royal Infimary of Edinburgh ward 220.
I work indoors so i am not at risk from uva damage to my skin.
Having XP does not mean you cannot work but you are advised to be employed in rhe a job where you work indoors so that sun exposure can not risk your skin of burning.
There are 7 types of XP and each type has different symptoms

翻译