Tanya's interview
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How did all start?
As a child I would have severe stomach pain and it was always assumed I had a stomach virus
Do you already have a diagnosis? How long did it take you to get it?
Yes. I was diagnosed when I was around 8 years old because my dad had received a diagnosis and was told his kids needed to be tested.
For what medical specialties have you been treated? What has been the most useful specialty for your?
C1 inhibitor given through my port
What has been the most useful thing for you so far?
Getting the C1inhibitor put back in my blood by IV every 3 days
What have been your biggest difficulties?
My 2 pregnancies because they were before the medicine was available before
How has your social and family environment reacted? Have your social or family relationships changed?
Before the medication was available I missed lots of planned family activities. Also medical bills went out of the roof
What things have you stopped doing?
having kids and mowing the lawn
What do you think about the future?
The future looks brighter because medications are getting better all the time.
So far, which years have been the best years in your life? What have you done during them?
The day I had my first born child started the best part of my life. Then my second son was born and life has been about my two sons and my husband.
What would you like to do if you didn’t have your condition?
I would have had a third child.
If you had to describe your life in a sentence, what would it be?
I feel like a piece of a puzzle that went missing from the box it was suppose to be in.
Finally, what advice would you give to a person in a similar situation?
Knowledge is power! Learn everything you can about yourself, your disorder and don’t be ashamed to inform others about yourself.
