Help us to help more people
  2. Dravet Syndrome
  3. Advice
The right medications
by Madolynn E.
Pour mon fils : régime cetogene
by Vanessa
Frankincense essential oil as a rescue
by Jayce
Having a great mom
by Samara
My Mom loves me!
by Kai Kristian Rudnick
Topamax was the most useful drug for us, but with 5 drugs still not seizure free
by Jake Wiesenfeld
estar en mi Dieta ketogenica
by Abigail gomez
Ketogen diet
by Mari Beate Guttorm
VNS
by Nele Schlegel
MMJ as a rescue with Frankinscence essential oil
by Brooke
Cannabis
by Shayne
Using intranasal midazolam instead of Diastat
by Luella Johnson
Finding the DSF has helped so much with research and knowledge
by Sabrina
Implantat VNS
by Lu von "Teufelchens Welt - das Dravet-Syndrom"
www.dravet.de
by Dominik Aurelio
Take it a day at a time
by
Éviter les microbes le plus possible
by Charlotte Veilleux
First seizure at the age of 7 months.
by Scott Morehouse
Attending Special Needs school rather than main stream
by Anonymous
The modified ätkinsdiet help me to have less epileptic seizures
by Emma Talea Kappus
Toute notre petite famille derriere notre fille qui se bat contre le SD.
by Marie
Ketogenic Diet
by Nicholas
Diacomit, Orfiril Long, Frisium
by Manuela
Diet with protein shakes, high in fat/oil, low in salt, low in sugar, and avoids fried/browned foods are best.
by Anna
treated w/ keppra and Depakene since Aug 2015
by Cristy
Lots of love and special attention
by Lillyonha
Mixture of meds.. Depakote , onfi, epidiolex
by Krystal
Early diagnosis
by Dawson
Early diagnosis
by Dawson
Epidiolex is working
by BFullam
Stiripentol worked for 6 weeks
by Elliot E
Getting the right medication
by Isla smith
Deus
by Barbara Matias
early intervention
by Madolynn E.
Pour moi : la danse
by Vanessa
A mom who will fight for me
by Jayce
family support
by Samara
I like splashing rocks at the beach!
by Kai Kristian Rudnick
Essential oils are very helpful for overall health and to shorten and reduce seizures
by Jake Wiesenfeld
el amor de toda mi familia
by Abigail gomez
The hospital in Sandvika, SSE
by Mari Beate Guttorm
The Therapy with a dog named " Emma"
by Nele Schlegel
Trust your gut you know your child more than anyone else
by Brooke
A mom who never stops fighting
by Shayne
Insisting on seeing an epileptologist that has experience with Dravet syndrome
by Luella Johnson
Using a CBD oil has helped with clusters and i have been able to down some of the other meds which has helped at school.
by Sabrina
Stiripentol
by Lu von "Teufelchens Welt - das Dravet-Syndrom"
http://kimberlys.de/forum/
by Dominik Aurelio
Avoid all known triggers
by
Avoir une bonne hygiène de vie
by Charlotte Veilleux