i was born premature to a mom who lived a very unhealthy lifestyle so even though I was really small and sick, no one really thought much of it.
soon they had to take it seriously because I was only getting worse not better. The older I got, &...
My Little Lily was born on the 17th May 2016. She is a twin. Her sisters name is Anna. We all got a surprise when Lily was born as we were expecting her to be a 7.5lb baby but she was only 4lbs14oz. She had trouble feeding as she wouldn't latch and t...
I was diagnosed at age 12 because of my short stature. I have a cardiac malformation but not usually related to Noonan syndrom. I'm small but at least the same height as my parents, 5 feet 6 inches ! The geneticist found right away which syndrom I ha...
my name is bree. my daughter and fiance have noonan syndrome. Arraya was diagnosed at 6 weeks of age with failure to thrive, supravalvular pulmonary stenosis, bilateral cleft palette, poor latch on. the first year...
5 people with Noonan Syndrome have taken the SF36 survey. Mean of Noonan Syndrome is 1825 points (51 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey