- 19q13.11 Microdeletion Syndrome
- Interviews
Petar's interview
How did all start?
After four years of blood testing my son 2016g finally got a diagnosis
Do you already have a diagnosis? How long did it take you to get it?
four years
For what medical specialties have you been treated? What has been the most useful specialty for your?
-
What has been the most useful thing for you so far?
my son has a lot of diagnoses and we treat each one with certain medicines
What have been your biggest difficulties?
Each diagnosis carries certain difficulties
How has your social and family environment reacted? Have your social or family relationships changed?
no ,everybody just doing fine
What things have you stopped doing?
we do not have to go too far, sometimes his movements are difficult and there is no friend and nowhere is he, even though he has 12 years
What do you think about the future?
i dont know
So far, which years have been the best years in your life? What have you done during them?
-
What would you like to do if you didn’t have your condition?
-I would like my son to be more independent and to have friends
If you had to describe your life in a sentence, what would it be?
chaos
Finally, what advice would you give to a person in a similar situation?
just to be patientce
