How we create our content

Three layers of content

DiseaseMaps combines three kinds of content, clearly separated on every page:

First-person patient experiences. Answers, stories and map entries written by registered community members living with each condition. They are opinions and lived experience, not medical advice, and they are shown with their author and date.
AI-assisted medical information. AI-generated drafts are labeled and kept separate from first-person patient experience. New medical drafts are not published as reviewed until verified source records and a human review are recorded. Legacy AI-assisted content is being inventoried, and its review status is shown when known.
Community data. Aggregated, anonymised statistics from our members: where they live (the maps), how they rate their quality of life (SF-36 surveys) and how they answer practical questions about daily life.

We label known AI-assisted content. A source mentioned by a model is not described as verified until a human reviewer checks and records it.
AI may translate or summarize community contributions, but it may not invent a patient experience or present lived experience as medical evidence.
We never alter what patients write; we only moderate spam and abusive content.
Pages with no real content for a language are excluded from search engines until they have it.
DiseaseMaps does not provide medical advice. Always consult a healthcare professional about your condition.

If you find an error in any of our pages, or you represent a patient organization and want to collaborate, please contact us. Contact us.