2. 19q13.11 Microdeletion Syndrome
3. Interviews

Terry's interview

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How did all start?

with PPS

Do you already have a diagnosis? How long did it take you to get it?

yes

For what medical specialties have you been treated? What has been the most useful specialty for your?

therapy

What has been the most useful thing for you so far?

excersices

What have been your biggest difficulties?

strength

How has your social and family environment reacted? Have your social or family relationships changed?

no

What things have you stopped doing?

doing as much physical things

What do you think about the future?

Do not know

So far, which years have been the best years in your life? What have you done during them?

younger

What would you like to do if you didn’t have your condition?

more lifting

If you had to describe your life in a sentence, what would it be?

It has not been good

Finally, what advice would you give to a person in a similar situation?

Be positive

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