- 19q13.11 Microdeletion Syndrome
- Interviews
Terry's interview
How did all start?
with PPS
Do you already have a diagnosis? How long did it take you to get it?
yes
For what medical specialties have you been treated? What has been the most useful specialty for your?
therapy
What has been the most useful thing for you so far?
excersices
What have been your biggest difficulties?
strength
How has your social and family environment reacted? Have your social or family relationships changed?
no
What things have you stopped doing?
doing as much physical things
What do you think about the future?
Do not know
So far, which years have been the best years in your life? What have you done during them?
younger
What would you like to do if you didn’t have your condition?
more lifting
If you had to describe your life in a sentence, what would it be?
It has not been good
Finally, what advice would you give to a person in a similar situation?
Be positive
