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Which advice would you give to someone who has just been diagnosed with 22q13 deletion / Phelan-McDermid Syndrome?

Advice for the newly diagnosed with 22q13 deletion / Phelan-McDermid Syndrome, written by people who have lived it. What they wish they had known on day one.

22q13 deletion / Phelan-McDermid Syndrome advice
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22q13 deletion / Phelan-McDermid Syndrome advice

22q13 deletion / Phelan-McDermid Syndrome life expectancy

What is the life expectancy of someone with 22q13 deletion / Phelan-McDermi...

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Celebrities with 22q13 deletion / Phelan-McDermid Syndrome

Celebrities with 22q13 deletion / Phelan-McDermid Syndrome

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Is 22q13 deletion / Phelan-McDermid Syndrome hereditary?

Is 22q13 deletion / Phelan-McDermid Syndrome hereditary?

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Is 22q13 deletion / Phelan-McDermid Syndrome contagious?

Is 22q13 deletion / Phelan-McDermid Syndrome contagious?

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ICD9 and ICD10 codes of 22q13 deletion / Phelan-McDermid Syndrome

ICD10 code of 22q13 deletion / Phelan-McDermid Syndrome and ICD9 code

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Natural treatment of 22q13 deletion / Phelan-McDermid Syndrome

Is there any natural treatment for 22q13 deletion / Phelan-McDermid Syndrom...

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Living with 22q13 deletion / Phelan-McDermid Syndrome

Living with 22q13 deletion / Phelan-McDermid Syndrome. How to live with 22q...

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22q13 deletion / Phelan-McDermid Syndrome diet

22q13 deletion / Phelan-McDermid Syndrome diet. Is there a diet which impro...

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World map of 22q13 deletion / Phelan-McDermid Syndrome

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Stories of 22q13 deletion / Phelan-McDermid Syndrome

22Q13 DELETION / PHELAN-MCDERMID SYNDROME STORIES
22q13 deletion / Phelan-McDermid Syndrome stories
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22q13 deletion / Phelan-McDermid Syndrome stories
MY SLOW DECLINE WITH STARGARDT.
I struggled with vision all my life. I was diagnosed with some colored blindness, near sidedness, and astigmatism. Then in 2013 cataracts was added to the mix. In 2015 I was wrongly diagnosed with having AMD and recommended I have cataracts removed a...

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22q13 deletion / Phelan-McDermid Syndrome forum

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