The Pursuit of Improvements and Cure

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I live in Brazil and I have a three-year-old boy named Davi who is diagnosed with abetalipoproteinemia. He is a lovely smiling boy.
Since my son was 6 months he has been taking special dietary, based on vitamins A-D-E-K supplementation, Medium Chain Triglycerides, Maltodextrin, and other supplements.
In spite of that, his vitamin E serum is too low and we are very worried about that.
Nowadays, he takes 5000 IU of vitamin E daily.
I read the book by Dr. Hegele’s patient Lori Fizard, heading "Living With Abetalipoproteinemia". She has a long history of effort and faith dealing with this disease.
My wife and I have decided to contact or travel to any health center where we can receive help and improve our son’s health conditions.