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Story about Alpha 1-antitrypsin deficiency , Cystic Fibrosis.

Mother to jack and Mia


Mia - aged 4 Jack aged 1 - Jack was affected badly from birth and has liver disease already. Mia was subsquently diagnosed but no symptoms so far. Concerned as there seems very little research into the alpha 1 condition

 

Jack also has cystic fibrosis which has effected him greatly and combined they are not the easiest to manage

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