Alstrom Syndrome UK
Details
- Name: Alstrom Syndrome UK
- Phone: 01803613117
- Website: http://www.alstrom.org.uk/
- Address: 31 Shearwater Drive, Torquay, Devon TQ2 7TL
- Contact
Location
Description
Alström Syndrome UK is an award winning charity who pride themselves on their personalised family support service, research initiatives and multi-disciplinary clinics where families can receive the most up to date treatments and advice from medical experts.
Alström Syndrome is an ultra rare, life limiting genetic condition which can affect all the main organs and can lead to progressive sight and hearing loss.
Alström Syndrome UK (ASUK) is a patient lead charity who are passionate about making a difference to the lives of people who are affected by Alström Syndrome.
Alstrom Syndrome UK
Details
- Name: Alstrom Syndrome UK
- Phone: 01803613117
- Website: http://www.alstrom.org.uk/
- Address: 31 Shearwater Drive, Torquay, Devon TQ2 7TL
- Contact
Location
Description
Alström Syndrome UK is an award winning charity who pride themselves on their personalised family support service, research initiatives and multi-disciplinary clinics where families can receive the most up to date treatments and advice from medical experts.
Alström Syndrome is an ultra rare, life limiting genetic condition which can affect all the main organs and can lead to progressive sight and hearing loss.
Alström Syndrome UK (ASUK) is a patient lead charity who are passionate about making a difference to the lives of people who are affected by Alström Syndrome.