Which advice would you give to someone who has just been diagnosed with Alternating Hemiplegia Of Childhood?

Advice for the newly diagnosed with Alternating Hemiplegia Of Childhood, written by people who have lived it. What they wish they had known on day one.

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ALTERNATING HEMIPLEGIA OF CHILDHOOD STORIES

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Alternating Hemiplegia Of Childhood stories

LEXI'S LIFE

Lexi has had epilepsy since she was 24hrs old and AHC spells since the first week of life. She was diagnosed with the ATP1A3 d801n mutation when she was 3.5yrs old and since then she has been on flunarizine which helped her some. She started solumedr...

870

8/24/17, 8:01 PM by Lexi

XAVIER'S STORY.

Some time after Xavier was born the social worker asked if we would foster him until family dynamics could be improved. This turned into a permanent arrangement when Xavier showed symptoms of AHC at six months and began weekly hospital visits. The ey...

856

6/7/17, 6:03 AM by [email protected]

SUE'S STORY

I cycle, walk and sell craft items top raise money for research into this disease because my the grand daughter of my oldest friend is a sufferer

684

5/16/17, 5:28 PM by Sue

Which advice would you give to someone who has just been diagnosed with Alternating Hemiplegia Of Childhood?

Advice for the newly diagnosed with Alternating Hemiplegia Of Childhood, written by people who have lived it. What they wish they had known on day one.

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