A Angelman Syndrome story

Feb 25, 2016

Angelman Syndrome

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My daugther Elena was the first diagnosed Angelman Syndrome case in Spain. She was almost 8 y.o. when we received the diagnose and this was devastating for us. We were alone, completely alone until we discovered the Angelman mailing list through Internet and this changed our life completely because for the first time we can share information with other families around the world and we received many "tricks" from other families in order better understand our daugther and this make a little easy our life.