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Nikki's interview


How did all start?

small itchy pimples that progressed into "blood blisters" and then to severe swelling in hands and feet

Do you already have a diagnosis? How long did it take you to get it?

No, took about three months once condition was fully developed

For what medical specialties have you been treated? What has been the most useful specialty for your?

none

What has been the most useful thing for you so far?

Danogen and Plasma transfusions

What have been your biggest difficulties?

work

How has your social and family environment reacted? Have your social or family relationships changed?

Very much so

What things have you stopped doing?

Handling heavy items and wearing uncomfortable shoes (pressure is a trigger)

What do you think about the future?

manageable

So far, which years have been the best years in your life? What have you done during them?

they all pretty much the same routine

What would you like to do if you didn’t have your condition?

Travel more

If you had to describe your life in a sentence, what would it be?

Mundane.

Finally, what advice would you give to a person in a similar situation?

Just accept it.


May 31, 2018

By: Nikki

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