- Hereditary Angioedema
- Interviews
Nikki's interview
How did all start?
small itchy pimples that progressed into "blood blisters" and then to severe swelling in hands and feet
Do you already have a diagnosis? How long did it take you to get it?
No, took about three months once condition was fully developed
For what medical specialties have you been treated? What has been the most useful specialty for your?
none
What has been the most useful thing for you so far?
Danogen and Plasma transfusions
What have been your biggest difficulties?
work
How has your social and family environment reacted? Have your social or family relationships changed?
Very much so
What things have you stopped doing?
Handling heavy items and wearing uncomfortable shoes (pressure is a trigger)
What do you think about the future?
manageable
So far, which years have been the best years in your life? What have you done during them?
they all pretty much the same routine
What would you like to do if you didn’t have your condition?
Travel more
If you had to describe your life in a sentence, what would it be?
Mundane.
Finally, what advice would you give to a person in a similar situation?
Just accept it.
