Question - Hereditary Angioedema
Patient Perspective
ResearcherHi Everyone,
I am interested in understanding and learning about your perspective on treatments and services available for HAE. What happens when you lose insurance and you need to obtain treatment? During this time, are you given treatment free of cost by anyone? Do you get reimbursed for any or all HAE treatments? Do you feel that services offered with the treatment are meeting your needs or do you rely on advocacy groups for support? Are there any needs that are not being met at the moment? Are there any programs that you feel are useful to you?
Thanks so much!
Dear Sir:
The aspects that you comment depend the health legislation of each country. In Spain, there is a public system that covers health care costs and finances a large part of the costs of medication on the basis of income.
On the other hand, I do not know about specific programs or support groups in my community and my treatment consists of a healthy lifestyle (especially in terms of reduce stress and control hours of sleep) and going to emergencies services in the event of an outbreak to receive a transfusion or inject C1 inhibitory protein. I also took as a maintenance treatment the drug: tranexamic acid 500 mg
Best regards
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