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Question - Hereditary Angioedema

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Asked 9 years ago MS123 2027

Hi Everyone,

I'm trying to understand what it is like for people with HAE. Therefore, would you ever switch treatment? Why or why not? What happens if you lose insurance coverage? Are you still recieving treatment? Was there a time where you had to pay out of pocket for treatment?

 

Thanks!

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Hi, i live in Macedonia and we have access to only 2 treatments for HAE, Berinert and Ruconest that basically have almost same structure (c1 inhibitor), so we don't have excperience in switching therapies. You can find info about treatments and patient experiences from all over the world at the web site of patient organization www.haei.org. please visit it!

Answered 9 years ago Natasa and Dejan 10
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