How HAE made me a better person
Jun 23, 2026
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One day I had a terrible HAE abdominal attack. My father told me I had to keep it a secret so I could fulfill my dreams. A year later, when he missed dancing with my sister at her Grad because he was in hospital, he told me I had to figure this out. He had enough money to send me to be a nurse, but not a doctor. 2 weeks before I started nursing school, my father dies at home, like many of his siblings. 35 years later, I am President of HAE Canada. Received a diagnosis for my daughter 4 years ago. Unfortunately not soon enough to prevent losing my sister. I can honestly say, I am a stronger person, because I have survived HAE.
2 comments
Oh my goodness your story kills me. I have just been diagnosed with HAE and am super nervous to get my children ages 7 and 11 tested. I wouldn't wish this disease on anyone.
Commented 10 years ago Katie 65
Sorry Katie just saw this now. There is one thing HAE gives us....resilience. Never under estimate your strength. 2 of my children have HAE. I find it more difficult being a caregiver then a survivor. I hear you...it's hard.
Jacquie
Commented 10 years ago Jacquie L.- Badiou 15
