How HAE made me a better person
Jul 13, 2026
Error
One day I had a terrible HAE abdominal attack. My father told me I had to keep it a secret so I could fulfill my dreams. A year later, when he missed dancing with my sister at her Grad because he was in hospital, he told me I had to figure this out. He had enough money to send me to be a nurse, but not a doctor. 2 weeks before I started nursing school, my father dies at home, like many of his siblings. 35 years later, I am President of HAE Canada. Received a diagnosis for my daughter 4 years ago. Unfortunately not soon enough to prevent losing my sister. I can honestly say, I am a stronger person, because I have survived HAE.
2 comments
<p>Oh my goodness your story kills me. I have just been diagnosed with HAE and am super nervous to get my children ages 7 and 11 tested. I wouldn't wish this disease on anyone.</p>
Commented 10 years ago Katie 65
<p>Sorry Katie just saw this now. There is one thing HAE gives us....resilience. Never under estimate your strength. 2 of my children have HAE. I find it more difficult being a caregiver then a survivor. I hear you...it's hard.</p> <p> </p> <p>Jacquie</p>
Commented 10 years ago Jacquie L.- Badiou 15
Login or register to leave a comment
Can people with Hereditary Angioedema work? What kind of work can they...
What are the latest advances in Hereditary Angioedema?
Which are the symptoms of Hereditary Angioedema?
Living with Hereditary Angioedema. How to live with Hereditary Angioed...
Hereditary Angioedema and depression
Celebrities with Hereditary Angioedema
Which advice would you give to someone who has just been diagnosed wit...
