Living with Ankylosing Spondylitis. How to live with Ankylosing Spondylitis?

Exercise regularly (work with physical therapist, stretch and strengthen, go for long walks, hike if you can, practice good posture).

Try to find a job that fits your body's limitations, or see if you can make adjustments at your current job. Prioritise, health being on the top of the list!

Make sure you get a good sleep.

Get to know your body, get to know yourself. It requires a lot of learning. And a lot of patience. Be consistent in anything you do (exercise, meditation, yoga, breathing exercises, sleep, time for work, time for family, and time to chill). It pays dividends.

Stress management is very, very important, as stress can trigger inflammations and consequently you find yourself in a lot of pain.

Make time for doing things you love to do. Hang out with your friends and family. Ask for help when you need one.

Stay positive and learn how to live with the disease as best as you possibly can :)

AS can be a hear some days but you can be happy if you choose to be. You have to find a great support system as well as some small activities to keep your mind busy. Social groups are great and a place to vent when needed and always boost moral when you are down, adult coloring has become a big hit and can even be done in bad days in bed or laying down. Music therapy feels the soul with that happy hormone we all have. You have to think positive in order to overcome the bad and to be happy. Surround yourselves with positive people and people who believe, love, and support you. Without that it can be used which is why most belong to groups in Facebook and such where everyone understands their disease and can help each other out an cheer them up. Reading also helps. Basically anything to distract your mind from pain or thinking about what next. You can't live like that. It will drag you down. So always be happy, help others if even just good morning how are you? That can make some ones day more than anything. Be sure your family and friends understand your disease as well.....There sky is the limit happiness is everywhere if you allow it in!

Yes

Proper disease management offers most folks a good quality of like. Getting the disease progression halted as early as possible is important.

Pace yourself don't over do it

I have found a level of happiness most of the time. I did this by accepting the disease but refusing to give in to it. I try not to let it stop me from doing the things I enjoy. I have become my own expert in knowing what works for me and what doesn't.

Faith, persistence, attitude are important to make it through tough days!

Unhappy? Apply for a medical marijuana card, visit a church, or volunteer with those less fortunate. The grass is not always greener on the other side.

Do what you can, take frequent breaks, join a support group, see doctor regularly

Education and positive thinking and have a don't give up attitude.

One can be happy with AS. For me to be happy with AS is to just live my life as I can. Walk around the city to avoid sitting still. On my bad days I just ask for help where I can and just relax and use my bad days for Netflix and chill as they say.

I was an extremely athletic person and the affects of AS truly limited my activities. In turn I did go through the 5 stages of grief; however, once properly diagnosed and a good treatment plan, things did change for the better. I accepted my limitations and found new activities and hobbies that demanded less of me but truly enjoy...and activities where I can 'put down' for another day if feeling a flare or poorly.
Lastly, a equally accepting and supportive spouse made the change complete! In the end, yes, I have bad days and rest as needed but sieze the good days!

By the Grace of Allah SWT Very Happy

Bisogna accettarla
Si è felici anche se si hanno forti limitazioni funZionali
Si frequentano anche gruppi di sostegno psicologico

Keep fighting and doing what you like and take one day at a time without forgetting where you want to go!

Find a support team of friends, family, care providers or other with similiar diseases. Cry when you need to. Complain when you need to and ask for help. Expect proper pain control and dont be afraid of trying new drug therapies. Get a really good mattress and pillows, stair lift if needed and look for charities, VA and insurance to assist with costs or modifications. Learn about transportation alternatives in your area. Seek out delivery services for groceries and medications. Remember, your life is not over its just heading down a different path that can still be joyful. Do not survive, thrive!